Couzos, S., Lea, T., Murray, R., & Culbong, M. (2005). ‘We are not just participants—we are in charge’: the NACCHO ear trial and the process for Aboriginal community-controlled health research. Ethnicity & health, 10(2), 91-111. https://doi.org/10.1080/13557850500071038
Zion, D., Gillam, L., & Loff, B. (2000). The Declaration of Helsinki, CIOMS and the ethics of research on vulnerable populations. Nature medicine, 6(6), 615. doi:10.1038/76174
Weeks, A., Swerissen, H., & Belfrage, J. (2007). Issues, challenges, and solutions in translating study instruments. Evaluation Review, 31(2), 153-165. http://journals.sagepub.com/doi/10.1177/0193841X06294184
Bonevski, B., Randell, M., Paul, C., Chapman, K., Twyman, L., Bryant, J., . . . Hughes, C. (2014). Reaching the hard-to-reach: a systematic review of strategies for improving health and medical research with socially disadvantaged groups. BMC medical research methodology, 14(1), 42. https://doi.org/10.1186/1471-2288-14-42
Telford, R., Boote, J. D., & Cooper, C. L. (2004). What does it mean to involve consumers successfully in NHS research? A consensus study. Health Expectations, 7(3), 209-220. doi:1111/j.1369-7625.2004.00278.x
Trivedi, P., & Wykes, T. (2002). From passive subjects to equal partners: qualitative review of user involvement in research. The British Journal of Psychiatry, 181(6), 468-472. https://www.ncbi.nlm.nih.gov/pubmed/12456515
